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TITLE: Parents of Children Diagnosed with Congenital Anomalies or Cerebral Palsy: Identifying Needs in Interaction with Healthcare Services
AUTHORS: Santos, Ana Joao ; Braz, Paula; Folha, Teresa; Machado, Ausenda; Matias Dias, Carlos;
PUBLISHED: 2023, SOURCE: CHILDREN-BASEL, VOLUME: 10, ISSUE: 6
INDEXED IN: Scopus WOS CrossRef
IN MY: ORCID
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TITLE: Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey
AUTHORS: Marcus, Elena; Latos Bielenska, Anna; Jamry Dziurla, Anna; Barisic, Ingeborg; Cavero Carbonell, Clara; Den Hond, Elly; Garne, Ester; Genard, Lucas; Santos, Ana Joao ; Lutke, LRenee; Dias, Carlos Matias; Pedersen, Christina Neergaard; Neville, Amanda J.; Niemann, Annika; Odak, Ljubica; Pierini, Anna; Rico, Juan; Rissmann, Anke; Rankin, Judith; Morris, Joan K.;
PUBLISHED: 2022, SOURCE: BMC PEDIATRICS, VOLUME: 22, ISSUE: 1
INDEXED IN: Scopus WOS CrossRef: 4 Handle
IN MY: ORCID
3
TITLE: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study
AUTHORS: Sinclair, Marlene; McCullough, Julie E. M.; Elliott, David; Braz, Paula; Cavero Carbonell, Clara; Dornan, Lesley; Jamry Dziurla, Anna; Joao Santos, Ana ; Latos Bielenska, Anna; Machado, Ausenda; Paramo Rodriguez, Lucia;
PUBLISHED: 2021, SOURCE: JMIR PEDIATRICS AND PARENTING, VOLUME: 4, ISSUE: 4
INDEXED IN: Scopus WOS