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Availability, Accessibility and Delivery to Patients of the 28 Orphan Medicines Approved by the European Medicine Agency for Hereditary Metabolic Diseases in the Metabern Network
AuthID
P-00R-SKB
P-00R-SKB
72
Author(s)
Heard, JM
·Vrinten, C
·Schlander, M
·Bellettato, CM
·van Lingen, C
·Scarpa, M
·Matthijs, G
·Nassogne, MC
·Debray, FG
·Roland, D
·[+52]·
Leao Teles, E
·Azevedo, O
·Silva, EMFR
·Matos, LMDFD
·Lajic, S
·Darin, N
·Groselj, U
·Tansek, MZ
1
Group Author(s)
MetabERN Collaboration Grp
Tipo de Documento
Article
Year published
2020
Publicado
in ORPHANET JOURNAL OF RARE DISEASES, ISSN: 1750-1172
Volume: 15, Número: 1
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ISSN: 1750-1172
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| Name Order | Nome | Name Order | Nome | Name Order | Nome | ||
|---|---|---|---|---|---|---|---|
| 1 | Heard, JM; | 2 | Vrinten, C; | 3 | Schlander, M; | ||
| 4 | Bellettato, CM; | 5 | van Lingen, C; | 6 | Scarpa, M; | ||
| 7 | Matthijs, G; | 8 | Nassogne, MC; | 9 | Debray, FG; | ||
| 10 | Roland, D; | 11 | Chamova, T; | 12 | Kozich, V; | ||
| 13 | Pavel, J; | 14 | Zenker, M; | 15 | Lampe, C; | ||
| 16 | Das, AM; | 17 | Hennermann, J; | 18 | Kolker, S; | ||
| 19 | Weinhold, N; | 20 | Mohnike, K; | 21 | Gruenert, S; | ||
| 22 | Lund, AM; | 23 | Morales Conejo, M; | 24 | del Toro Riera, M; | ||
| 25 | Aldamiz Echevarria, L; | 26 | Garcia Silva, MT; | 27 | Schiff, M; | ||
| 28 | Gouya, L; | 29 | Labrune, P; | 30 | de Lonlay, P; | ||
| 31 | Belmatoug, N; | 32 | Germain, DP; | 33 | Cano, A; | ||
| 34 | Dobbelaere, D; | 35 | Jones, S; | 36 | Dawson, C; | ||
| 37 | Deegan, P; | 38 | Santra, S; | 39 | Vijay, S; | ||
| 40 | Ramadza, DP; | 41 | Baric, I; | 42 | Zigman, T; | ||
| 43 | Pflieger, G; | 44 | Szakszon, K; | 45 | Kaposta, R; | ||
| 46 | Gasperini, S; | 47 | Burlina, A; | 48 | Parenti, G; | ||
| 49 | Strisciuglio, P; | 50 | Ceccarini, G; | 51 | Federico, A; | ||
| 52 | Simonati, A; | 53 | Tumiene, B; | 54 | Huidekoper, H; | ||
| 55 | van Spronsen, F; | 56 | Bosch, A; | 57 | Rubio Gozalbo, ME; | ||
| 58 | Visser, G; | 59 | Tangeraas, T; | 60 | Aarsand, A; | ||
| 61 | Kiec Wilk, B; | 62 | Gaspar, AMSM; | 63 | Quelhas, D; | ||
| 64 | Leao Teles, E; | 65 | Azevedo, O; | 66 | Silva, EMFR; | ||
| 67 | Matos, LMDFD; | 68 | Martins, E ; | 69 | Lajic, S; | ||
| 70 | Darin, N; | 71 | Groselj, U; | 72 | Tansek, MZ; |
